We support the "Mukoviszidose e.V. – Helfen.Forschen.Heilen" association.
Mucoviscidosis is among the most common hereditary metabolic diseases. The main symptoms of this disease are chronic cough, severe pneumonia, digestive disorders and short weight. Mucoviscidosis is caused by genotype disorders.
A cystic fibrosis also impacts the salt and water circulation and the current flow. Consequences: Viscous mucus congests life-critical organs and in particular the lung, the pancreas, the liver and the intestine. The mucus inside the lung is a perfect breeding ground for bacteria. Bacteria cause infections, thus destroying the lung tissue at long term.
Some 8,000 children, adolescents and young adults in Germany suffer from this currently incurable disease. Around 300 children are born with mucoviscidosis in Germany every year. Five percent of the global population are healthy trait carriers of this vicious disease. While being healthy themselves, these persons can pass in mucoviscidosis.
The work of Mukoviszidose e.V.
Mukoviszidose e.V. has been the point of contact for all questions concerning mucoviscidosis for more than forty years. Its members include concerned patients and their relatives, as well as physicians, scientists, therapists, physiotherapists, nutritionists, caregivers, social workers, psychologists, sports scientists and lawyers. The association supports research initiatives and therapies for concerned patients, helps patients to help themselves and is engaged in communication concerning the disease to raise critical awareness for patients.
Would you like to help?
The Mukoviszidose e.V. association urgently needs the support of private persons and companies and offers a variety of opportunities. You may e. g. become "guardian angel" for a concerned child, donate on-line, apply for a supporting association membership or find other ways of support.
For more information about the association: www.muko.info